PRISM is an epilepsy research project focussed on having EEGs at home that are cool, involving a device that is easy to use, and which provides the information needed by clinicians!
We are working closely with People With an Epilepsy (PWE), their caregivers, and their clinicians, to figure out how we can collect the data needed to learn more about a person’s individual epilepsy (to improve treatment and care) - and to figure out even if it is an epilepsy (someone could be having Functional Seizures/NEAD, be fainting, having an anxiety attack instead - or all of the above in addition to epileptic seizures!).
In our adult cohort/group of people, we have people of varying sexes, ethnicities, races, locations, and cultures. Included are people with an intellectual disability, autism, movement disorders, then of course people with an epilepsy but also parents and caregivers!
Who we are
Torie Robinson
Podcast Host at Epilepsy Sparks Insights
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CEO of Epilepsy Sparks & international public speaker regarding epilepsies.
Specific PPI experience within epilepsy organisations and MedTech companies.
A person with a complex epilepsy and mental health challenges.
Ed Shelton
Co Founder and CTO, huru
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16+ yrs experience as a Product Designer and researcher (e.g. FSW, Dyson, Bristol University).
60 patents and 30 registered designs and awards.
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Ed is passionate about making great products that make peoples lives better.
Josh Eggleston
Co Founder and CEO, huru
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15+ yrs experience as a Program manager (e.g. Newton, Dyson, NHS).
Expertise with complex translational technology projects
Josh is on a mission to make medical devices less intrusive, more useful and fundamentally desirable.
Plain english summary
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There exists an exciting opportunity to create a new type of EEG technology. One that not only provides great outputs to clinicians, but is more accessible, comfortable and home based.
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We want to connect with People with Epilepsy to co-design this product. No travel will be required, but we will send you some props to test out and then share feedback through interviews over the phone.
